The Myelin Project is 501(c)3 non profit organization established in 1989 by Augusto Odone and his wife, Michaela. Their son, Lorenzo Odone, suffered from X-linked adrenoleukodystrophy (X-ALD), the most common of the leukodystrophies. The story of the Odones' struggle was dramatized in the 1992 film Lorenzo's Oil.